This morning I managed to get up and ready for church. I haven't been able to physically go to church in over a year, I wasn't even able to make the Easter service. It took some spoons and was kinda difficult, but I knew it'd be worth it - I'd be able to see my friends, thank people for praying for me, hug Joaquin, meet Samuel and love on all the rest of my kiddos!
But I forgot an important detail to all of this - the service time at the church had changed. I was ready to go and thought I might be a little bit late, but in reality the sermon was over half way over and I'd used too many spoons getting ready.
I was so close to being able to go, but it was too far for my body to handle.
I refused to let my Sunday be ruined and determined to hear a sermon or something like it, so mom and I watched last weeks Flatirons sermon and the message hit me to the
core.
God's an expert at using bad things, upsetting things, to show Himself and draw us closer to Him. Sometimes you just need to put the hurt aside and let Him do what He does best; love you.
This isn't how I planned to spend my Sunday morning, but it is the way God used to reach me and touch my heart.
Sunday, November 10, 2013
Tuesday, July 9, 2013
Best Road Trip
I'm heading home from going to/being in my sister's wedding, wedding was in Kentucky and I live in Colorado, and therefore I need to entertain myself in the car. My usual go to for boredom, pretending to be a dinosaur, doesn't work when you're in a car, but I'm an adaptive person and I've made a wonderful car game. It only works for people riding in the car...unless you want to die via fiery car crash.
Look out the window, focusing on the cars next to you - namely the driver's side window. Wait/hope the driver looks over and then open your eyes as big possible while smiling as much as you can. Keep staring at them like that until they drive past your car.
Repeat what you did to the other unsuspecting motorists until you laugh too hard to breathe.
It is awesomely hilarious.
Saturday, April 13, 2013
Catch Up
I hadn't blogged for awhile when I decided to just write something up about my friend's new son and I remembered how much I freaking love Blogging! I haven't in forever because I have this thing about blogging; I want whatever I write on here to be well written and worth you clicking it and with how poorly I've been doing, I just didn't think I could do it. I seriously have like a notebook of posts I've written up but not posted because they "weren't good enough."
But now I've decided to get back into the habit not only because I love it so much, but to have a way to write frequently. The accident in '11 did a lot more damage than any of us thought it did, it combined with a lot of seizures and concussions have made it where reading and writing is very difficult for me. The way to fight back and gain that ground again is to write and read on a regular basis, so here I am.
The plan right now is to have a weekly appointment I guess you could call it and then add more when I'm able. The first one is going to be "Slender Saturday". I know a lot about the myths, shows, games and creepy pastas involving Slender Man, so it'll be really easy to have something every week. Like I could give an overview of Marble Hornets or another series, a review of the games, etc.
I know Slender Man isn't horribly exciting and most, if not all, of the people who read my blog are more interested in how I'm doing than learning about a new monster on the block. But fear not reading people - I've actually found a great way to share what's going on; my Tumblr. I post things as they happen on there, like if I have a seizure I'll make a post that says "I just had a seizure". And once I've gotten enough writing mojo back to add another weekly thing I'm going to have "Medical Monday" where I'll wrap up the weeks advents and post them.
So, that's the hopeful future of this blog for now. Time to catch people up on how I've been doing.
My last important post was about my seizures coming back, so I'll start from there.
But now I've decided to get back into the habit not only because I love it so much, but to have a way to write frequently. The accident in '11 did a lot more damage than any of us thought it did, it combined with a lot of seizures and concussions have made it where reading and writing is very difficult for me. The way to fight back and gain that ground again is to write and read on a regular basis, so here I am.
The plan right now is to have a weekly appointment I guess you could call it and then add more when I'm able. The first one is going to be "Slender Saturday". I know a lot about the myths, shows, games and creepy pastas involving Slender Man, so it'll be really easy to have something every week. Like I could give an overview of Marble Hornets or another series, a review of the games, etc.
I know Slender Man isn't horribly exciting and most, if not all, of the people who read my blog are more interested in how I'm doing than learning about a new monster on the block. But fear not reading people - I've actually found a great way to share what's going on; my Tumblr. I post things as they happen on there, like if I have a seizure I'll make a post that says "I just had a seizure". And once I've gotten enough writing mojo back to add another weekly thing I'm going to have "Medical Monday" where I'll wrap up the weeks advents and post them.
So, that's the hopeful future of this blog for now. Time to catch people up on how I've been doing.
My last important post was about my seizures coming back, so I'll start from there.
- Seizures are common place now; I have at least 1 every other day. We know I seize in my sleep, but it's not like we can count them or anything.
- I can kinda walk occasionally. When out of the house I'm always in Cale, to be without him is just unsafe. At home I'm usually anchored to one place all day. I've been banned from the stairs because I was falling down/up them so much is was just too risky. Being able to go into the kitchen and make lunch is usually a stretch too. Fortunately I have Cale and a really awesome family who do more than what should be asked of them to help me out. My sister's boyfriend carries me and breaks me out of seizures all the time because he's just the bomb. She picked very very well.
- The current diagnosis is Chronic Lyme Disease. If you want to know about it watch "Under Our Skin" it's on netflix and take a look at the websites at the bottom of this post. I kinda suck at explaining things.
- My symptoms are as follows: 1) Barely being able to walk 2) Seizures 3) High levels of chronic pain 4) My body can't control its temperature; I'm pretty much cold blooded so just sitting outside can be dangerous. If I get too hot I have a seizure and the same applies to being cold, so things like BBQs are out of the question and I have to look at a detailed weather report to pick out what I'm going to wear. My phone has an awesome app thing that shows the highs and lows for the day, has a 4 day plan and, this is the most helpful, has a graph of predicted temperatures per hour. I'm sure there are other symptoms, I just can't remember them off the top of my head.
- Tired of Lyme website
- A look inside what having Chronic Lyme is like
- Tire of Lyme Facebook page
- Lyme Disease One Day at a Time Facebook page
- Lyme Chick Facebook page
- Lyme Support Bracelets
- The Spoon Theory
- My Tumblr
- My other Tumblr
Monday, March 25, 2013
Having a Baby Changes Everything
Yesterday one of my friends welcomed her first child, a beautiful baby boy, into the world. Not only was it the first child for her and her husband, it was also the first Grandchild in her family. Just by being born this little guy changed so many lives - Parents of the bride were transformed into grandparents and her brother turned into an uncle. Such a huge and amazing change from the birth of one child. The first child. Welcome into the world little guy, you've already had a major impact on your world and I hope you're a blessing to everyone you met for the rest of your life.
Sunday, July 22, 2012
Herx Sucks
I haven't written in awhile because there hasn't been a ton to tell. I forgot to mention in my last post that I can walk again. I'm not particularly good at it and I can't go for long distances, but I can walk and stand again.
Right now, I'm probably getting better, but feeling much worse. It's called Herx, pretty much the anti-biotics are working and have killed a lot of spirochetes. That's the getting better part, less spirochetes means that we're gaining ground. The feeling worse comes from the fact that I now have a ton dead spirochetes in my system and that is making my body flip out. A lot. I've been having seizures, my other symptoms and pain are a lot worse and I honestly just feel miserable and very sick.
We don't know when this set of Herx will pass, but I for one hope it passes very very soon.
If I'm feeling better or things change I'll try to blog more, but until then thank you all for your prayers and feel free to ask any questions- just keep in mind that I may take awhile to get back to you :)
Right now, I'm probably getting better, but feeling much worse. It's called Herx, pretty much the anti-biotics are working and have killed a lot of spirochetes. That's the getting better part, less spirochetes means that we're gaining ground. The feeling worse comes from the fact that I now have a ton dead spirochetes in my system and that is making my body flip out. A lot. I've been having seizures, my other symptoms and pain are a lot worse and I honestly just feel miserable and very sick.
We don't know when this set of Herx will pass, but I for one hope it passes very very soon.
If I'm feeling better or things change I'll try to blog more, but until then thank you all for your prayers and feel free to ask any questions- just keep in mind that I may take awhile to get back to you :)
Monday, June 25, 2012
Return of the Seizures
I've got about a weeks worth of backlogged posts that I'll be working on posting soon, but this recent change in my medical situation is important so I decided not to wait on it and just post about it now.
Saturday night I was found at the bottom of the stairs seizing. We estimate that I was unconscious for 5 to10 minutes and it took me several hours to figure out where I was and what had happened. Fortunately my family was able to take care of the situation, so no EMTs ambulance rides or ER visits this time. I had a couple of seizures in my sleep that night and may have had another one last night before I went to sleep.
As of right now we don't know what's causing them. I have a history of seizures, but we thought they were caused by a medication I was taken off of, so the ones I'm having now are confusing and concerning. They may be being cause by another medication or possibly the heat since right now Colorado is in the 100s and my body cannot control it's temperature worth beans. I overheat really easily and when that happens I usually have more trouble controlling my pain and fall into heatstroke at the drop of a hat, so now we're thinking that maybe my body really flipped out when I got too hot.
We've called my doctor, but we haven't gotten any orders as of yet.
I apologize for the sloppiness of this post, after seizures my thinking gets really scrambled and I have a hard time communicating, but I didn't want to wait on letting you guys know what was going on.
Thank you very much for your thoughts and prayers, they mean the world to me and my family and, as always, feel free to ask any questions you may have.
Thanks for reading and God bless <3
Saturday night I was found at the bottom of the stairs seizing. We estimate that I was unconscious for 5 to10 minutes and it took me several hours to figure out where I was and what had happened. Fortunately my family was able to take care of the situation, so no EMTs ambulance rides or ER visits this time. I had a couple of seizures in my sleep that night and may have had another one last night before I went to sleep.
As of right now we don't know what's causing them. I have a history of seizures, but we thought they were caused by a medication I was taken off of, so the ones I'm having now are confusing and concerning. They may be being cause by another medication or possibly the heat since right now Colorado is in the 100s and my body cannot control it's temperature worth beans. I overheat really easily and when that happens I usually have more trouble controlling my pain and fall into heatstroke at the drop of a hat, so now we're thinking that maybe my body really flipped out when I got too hot.
We've called my doctor, but we haven't gotten any orders as of yet.
I apologize for the sloppiness of this post, after seizures my thinking gets really scrambled and I have a hard time communicating, but I didn't want to wait on letting you guys know what was going on.
Thank you very much for your thoughts and prayers, they mean the world to me and my family and, as always, feel free to ask any questions you may have.
Thanks for reading and God bless <3
Wednesday, June 13, 2012
Noodle Legs Take 2
Monday evening I went to stand and my legs gave out completely. Since then I haven't been able to stand or walk, I don't even have the ability to transfer from one surface to another and, par usual, we don't know much about what's going on. I have an appointment with my main doctor on Monday to take a look at things and tomorrow I have physical therapy, so maybe my therapist will be able to help some. The current theory is that the spirochetes have outsmarted the antibiotics I'm on right now, so I'll probably have to start a more aggressive treatment that may include IV medicine.
Thought I should let you know, I don't know a ton right now, but things seem to have taken a downward turn again. I trust my doctor, he's dealt with Lyme cases before and isn't scared of my case. Things may get rougher, but I'm always up for a challenge and I've got a very good and loving God on my side. :)
As always, feel free to ask any questions you may have, I've actually improved the Q&A tab, so things will be easier than the FormSpring set up. And if you want to add something to my Smash Book, feel free to mail it to me. Thank you to everyone who is praying for me and reading this blog, I'll try my best to keep you all updated.
God bless,
Sara
Thought I should let you know, I don't know a ton right now, but things seem to have taken a downward turn again. I trust my doctor, he's dealt with Lyme cases before and isn't scared of my case. Things may get rougher, but I'm always up for a challenge and I've got a very good and loving God on my side. :)
As always, feel free to ask any questions you may have, I've actually improved the Q&A tab, so things will be easier than the FormSpring set up. And if you want to add something to my Smash Book, feel free to mail it to me. Thank you to everyone who is praying for me and reading this blog, I'll try my best to keep you all updated.
God bless,
Sara
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